More Background Information.

Site presented by Bill Tillier

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General Topics.
Specific Topics.
Presentations done for Muscular Dystrophy Canada.

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• General Topics
• Basic Medical Webpages.
• Book List.
• General Information.
• Internet & Medline Searches.
• Mission Statement.
• Question Your Doctor.
• Research Sites.
• Vitamins, Supplements.
• Webpage Credibility.
• Seven Warning Signs of Bogus Science.

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• Specific Topics
• Cells.
• Genetic Concepts
• Genetics Overview.
• Glossary.
• Glossary: Expanded Topics.
• Primer on Muscles.
• RNA Primer.
• Spinal Cord Injury and Research Review Canadian Paraplegic Association. 10/2005.
• Stem Cells Canadian Paraplegic Association. 04/2009.
• X Inactivation.

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• Presentations done for Muscular Dystrophy Canada
• Classification of NMI. 09/2008.
• Duchenne and Becker Muscular Dystrophy. Paper. 03/2006.
• Duchenne and Becker Muscular Dystrophy. PowerPoint. 11/2005.
• Duchenne and Becker Muscular Dystrophy. Key Facts. 11/2005.
• Encountering NMI. 12/2006.
• Encountering Neuromuscular Illness: Myasthenia Gravis. 12/2006.
• FSH Conference 2004.
• FSHD. Paper 02/2006.
• FSHD. Power Point 11/2005.
• FSHD. Key Facts. 02/2006.
• Genetics Overview. 04/2007.
• Limb Girdle Muscular Dystrophy. 11/2005.
• Manifesting Carriers. 01/2006.
• Myositis Disorders 04/2008.
• Myotonic Dystrophy. Paper. 12/2005.
• Myotonic Dystrophy. PowerPoint. 08/2007.
• Myotonic Dystrophy. Key Facts. 02/2006.
• Neuromuscular Research 03/2007.
• Preimplantation Genetic Diagnosis and Prenatal Screening. 07/2002.
• Research in the Works 2005.
• Research in the Works 2006.
• Research in the Works 2007.
• Research Update 2006.
• Research Update 2007.
• Spinal Muscular Atrophy. Paper 03/2006.
• Spinal Muscular Atrophy. Power Point 10/2007.
• Spinal Muscular Atrophy. Key Facts. 11/2005.

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Mission Statement:

There are many excellent web sites that present information on various neuromuscular disorders. When I looked at the web, I was struck by how scattered the information was, and the fact that much of the information is very technical. Therefore, the primary intention of this site is to help integrate different sources and to provide background to help the reader cope with complex medical jargon and methods. I am not trying to be comprehensive and I do not want to be redundant and present information that is already covered elsewhere.

Language is always a problem in medicine, so, I have begun to assemble a basic glossary of common medical terms and to provide some of the concepts involved in basic medicine and illness. When discussing muscle disorders, it only makes sense to have some background to what muscles are and what they do in the body, so I have provided some basic information on the body's muscles and some muscle web pages. Today, we need a basic understanding of the cell and its mechanisms as many of these disorders are expressed through, or mediated by the cell's subparts. Likewise, an understanding of basic genetics and protein synthesis is of help in understanding these disorders. In the future, I will be developing more information on coping and stress management.

Throughout the site, I refer to neuromuscular illnesses, as a group, as NMI (NMIs).

My thanks to Phyllis Javorsky, Edmonton, for proof reading the site. I will be developing and revising the site as time permits. I hope you find this site of help and I am open to suggestions for improvements at the e-mail listed.

Disclaimer:

I am not a medical Doctor and this information is not intended to be read as medical advice nor is it a substitute for medical advice. Please consult your Physician if you have medical concerns. I have done my best to offer a layman's interpretation of this material. Any opinions offered are personal and do not reflect those of my employer. This site is a personal hobby of mine. Thanks,

For comments or improvements, please contact Bill at e-mail: btillier@shaw.ca

Page Created: February 7, 2002.

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